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the boy whose skin fell off..
 

offline acrid milk hall from United Kingdom on 2004-03-25 13:33 [#01118288]
Points: 2916 Status: Lurker



channel 4. march 25. 9pm

"The last few months in the life of Jonny Kennedy, an
amazing 36-year-old who, since birth, has suffered from a
rare genetic skin condition (Epidermolysis Bullosa, or EB),
where any knock or friction means his skin blisters and
literally comes off. Jonny has now been told that, as a
result of EB, he has terminal cancer and has just months to
live.

But far from bemoaning his lot, Johnny is planning to make
the last days of his life as exciting as possible. Not only
does he organise his own funeral, but he also moves into his
own home, goes gliding and visits Downing Street to talk
about Debra, the fundraising charity for the condition.
Every so often a documentary comes along that is absolutely
extraordinary, and this is one of them. Jonny's courage
should be applauded."


 

offline pomme de terre from obscure body in the SK System on 2004-03-25 13:34 [#01118292]
Points: 11941 Status: Moderator | Show recordbag



*doesn't set vcr*


 

offline rudster from the glasgow on 2004-03-25 13:34 [#01118293]
Points: 3169 Status: Lurker



hmm will check oot later


 

offline Anus_Presley on 2004-03-25 13:34 [#01118294]
Points: 23472 Status: Lurker



yeah i plan to watch it.


 

offline acrid milk hall from United Kingdom on 2004-03-25 13:35 [#01118298]
Points: 2916 Status: Lurker | Followup to acrid milk hall: #01118288



the boy whose skin fell off..


 

offline Xanatos from New York City (United States) on 2004-03-25 13:35 [#01118299]
Points: 3316 Status: Moderator | Show recordbag



its called "the boy whose skin fell off"?


 

offline pomme de terre from obscure body in the SK System on 2004-03-25 13:35 [#01118300]
Points: 11941 Status: Moderator | Show recordbag



Id hit it.


 

offline tango from Doncaster (United Kingdom) on 2004-03-25 13:35 [#01118301]
Points: 1620 Status: Lurker



i heard about this on lbc earlier - i missed what the
disease was tho as i switched on halfway through - i may
give it a look


 

offline Anus_Presley on 2004-03-25 13:35 [#01118302]
Points: 23472 Status: Lurker | Followup to Xanatos: #01118299



yes


 

offline oscillik from the fires of orc on 2004-03-25 13:36 [#01118303]
Points: 7746 Status: Regular



*sing along to chorus of The Zephyr Song*

fly away on my leper
i'll glue his wings together
and in this perfect weather
his skin will never sever


 

offline Netlon Sentinel from eDe (Netherlands, The) on 2004-03-25 13:42 [#01118320]
Points: 4736 Status: Lurker



goes gliding???

heh

:/


 

offline Anus_Presley on 2004-03-25 14:08 [#01118508]
Points: 23472 Status: Lurker



poorr rrotten buggerr.


 

offline acrid milk hall from United Kingdom on 2004-03-25 14:11 [#01118536]
Points: 2916 Status: Lurker



indeed


 

offline Anus_Presley on 2004-03-25 14:12 [#01118551]
Points: 23472 Status: Lurker



bahahahaha things such as 'constant wanking... pull the skin
off'


 

offline promo from United Kingdom on 2004-03-25 15:11 [#01119024]
Points: 4227 Status: Addict



Very very sad.


 

offline JLefrere from London (United Kingdom) on 2004-03-25 15:25 [#01119120]
Points: 253 Status: Regular



When he was talking to McAndrew, it was so so sad...but then
after it, what he did, joking about it, that was nice to see
:) but of course, not really a happy ending. I mainly pitied
him for his idea of the afterlife, but I suppose I'd end up
thinking the same if I had the disease.


 

offline J Swift from United Kingdom on 2004-03-25 15:33 [#01119166]
Points: 650 Status: Regular | Followup to JLefrere: #01119120



"I mainly pitied him for his idea of the afterlife.."

I hate people like you so much.


 

offline JLefrere from London (United Kingdom) on 2004-03-25 15:35 [#01119182]
Points: 253 Status: Regular



"Religion is the opium of the people" - so true.


 

offline J Swift from United Kingdom on 2004-03-25 15:38 [#01119203]
Points: 650 Status: Regular | Followup to JLefrere: #01119182



Never even mentioned religion


 

offline marlowe from Antarctica on 2004-03-25 15:42 [#01119227]
Points: 24588 Status: Lurker



So, the question has to be asked --- Who's been logging in
as Anus_presley since September!?!?!


 

offline JLefrere from London (United Kingdom) on 2004-03-25 15:42 [#01119228]
Points: 253 Status: Regular



Erm I just reiterated what you picked out from what I
said...
Or is it that you hate me for being arrogant? I don't really
care, I know I am, sometimes I have strong views, stick to
them and denounce what anyone else says. It's not like I
can't be influenced by people into changing what I think,
it's happened every now and then, but for the most part I'll
think and say whatever the fuck I like thank you very much.


 

offline marlowe from Antarctica on 2004-03-25 15:44 [#01119233]
Points: 24588 Status: Lurker | Followup to JLefrere: #01119228



Is Milton Keynes still the turd-bowl of England?


 

offline princo from Shitty City (Geelong) (Australia) on 2004-03-25 15:46 [#01119247]
Points: 13411 Status: Lurker



The Boy whose pants feel down!


 

offline big from lsg on 2004-03-25 15:46 [#01119249]
Points: 23727 Status: Regular | Show recordbag



But far from bemoaning his lot, Johnny is planning to
make
the last days of his life as exciting as possible. Not only
does he organise his own funeral, but he also moves into
his
own home, goes gliding and visits Downing Street to talk
about Debra, the fundraising charity for the condition.

:(


 

offline Anus_Presley on 2004-03-25 15:48 [#01119258]
Points: 23472 Status: Lurker



who's this marlowe chap?


 

offline JLefrere from London (United Kingdom) on 2004-03-25 15:51 [#01119276]
Points: 253 Status: Regular



Yes, MK's famous for being, shite basically. I'm out of here
in september, after 18 years of gridded, monotonous
concrete.


 

offline J Swift from United Kingdom on 2004-03-25 15:53 [#01119280]
Points: 650 Status: Regular | Followup to JLefrere: #01119228



No I just hate people who say things like that in general.

Arrogant yeah - Especially when scientists don't even know
what 90% of the Universe is made of.

Still, you're a local boy! Know the Junction 14 lot??


 

offline JLefrere from London (United Kingdom) on 2004-03-25 15:58 [#01119296]
Points: 253 Status: Regular



Yeah I know, I suppose I am basing my atheism on science
disproving religion. But I think I'd believe the same if
there were no scientists or religious leaders, it's just
much more likely that there's nothing more to what we see.
Anyway um...no can't say I do? don't really know what you're
talking about maybe I'm just being thick.


 

offline marlowe from Antarctica on 2004-03-25 15:58 [#01119297]
Points: 24588 Status: Lurker



I want to know how this boy afforded a house?? Skimming
money from his charity, I'll bet :@!


 

offline Anus_Presley on 2004-03-25 16:00 [#01119303]
Points: 23472 Status: Lurker | Followup to marlowe: #01119297



He's an actorr. Everr seen Alien Resurrection?


 

offline rongEnemy from Atlanta (United States) on 2004-03-25 16:03 [#01119311]
Points: 705 Status: Regular | Followup to acrid milk hall: #01118288



HAHAHAHAHAHAHAHAH
THAT GUYS SOOOO FUCKIN UGLY!!!!! LMMFAO!!!


 

offline big from lsg on 2004-03-25 16:04 [#01119321]
Points: 23727 Status: Regular | Show recordbag



i bet you guys wouldnt find it as funny if your skin came
off


 

offline J Swift from United Kingdom on 2004-03-25 16:05 [#01119324]
Points: 650 Status: Regular



You realise the current Unified Theory (of everything) is
that the reality we can see and experience is supported by
pockets of energy existing in 26-dimensional hyperspace
(number of dimensions varies depending on which version of
string theory, or M-theory, you're going along with).

Science is easily leapfrogging religion in "far out"-ness
these days.

It is also theorised that reality is constantly folding and
unfolding itself, and is all supported by this underlying
energy and order... There's also a thing called a "God"
particle - Which is the thing that turns energy into
matter..

Still all theoretical - But science hasn't been
contradicting religion since the days of Newton... In fact,
the two have a very large grey middle ground these days..


 

offline rongEnemy from Atlanta (United States) on 2004-03-25 16:05 [#01119326]
Points: 705 Status: Regular | Followup to big: #01119321



SKIN????!!!!!!!!
HAHAHAHAHHAHAHAHAHAH
THATS SOOOOO FUCKIN FUNNY!!!!!! LMMFAO!!!!!!1


 

offline big from lsg on 2004-03-25 16:08 [#01119339]
Points: 23727 Status: Regular | Followup to rongEnemy: #01119326 | Show recordbag



uhm,
skin



 

offline J Swift from United Kingdom on 2004-03-25 16:08 [#01119340]
Points: 650 Status: Regular



I'd recommend anyone check out David Bohm's work (Google) -
Regarded as the most important quantum physicist of our
time.

Things he has to say on non-locality and cosmic order are
pretty mind blowing if you're not too up to date with modern
physics.


 

offline Anus_Presley on 2004-03-25 16:10 [#01119349]
Points: 23472 Status: Lurker | Followup to big: #01119321



who finds it funny?


 

offline rongEnemy from Atlanta (United States) on 2004-03-25 16:10 [#01119350]
Points: 705 Status: Regular



HAHAHAHAHAHHAAHHAHAAHAH!!!!!!!
QUANTUM PHYSICIST!!??!!!??
HOLY SHIT! IM GONNA PASS OUT FROM LAUGHING SO MUCH!!!!!!!!
YOU GUYS ARE HILARIOUS!!!!


 

offline big from lsg on 2004-03-25 16:13 [#01119358]
Points: 23727 Status: Regular | Followup to Anus_Presley: #01119349 | Show recordbag



me
i was kidding
how awful of me
:9


 

offline acrid milk hall from United Kingdom on 2004-03-25 16:13 [#01119365]
Points: 2916 Status: Lurker



in medieval times - science + religion went hand in hand.
scientists sought to understand the world around them in
order to better appreciate the world god had created for
them.


 

offline JLefrere from London (United Kingdom) on 2004-03-25 16:16 [#01119383]
Points: 253 Status: Regular



I know about string theory, yes, but I'm thinking about
things on a much more basic level than that. Religion isn't
mainly concerned with the structure of the universe (unless
you want to believe that Earth is 6000 years old or whatever
it was). I was talking about the (imo) absurd idea of the
afterlife. When you die, your brain shuts down, and you rot
in the ground. Why should there be anything more? No reason
for it whatsoever. The fact that we call ourselves life has
no significance, we're all just matter and energy. It's all
there for believing for those with a bad life, exploited or
in this case dying of illness. Even William Blake, certified
megachristian, believed in this. I forget the exact quote, I
think it was in 'a chimney sweeper' if you've read it, "they
are gone up to praise god and his priest and king/who make
up a heaven of our misery"


 

offline acrid milk hall from United Kingdom on 2004-03-25 16:45 [#01119499]
Points: 2916 Status: Lurker



death is the only certainty in life. everything we are is a
(concious or subconcious) reaction to our own mortality.
that might sound a bit morbid on paper - but i actually find
it quite positive.
for instance (and i realise that we're wandering off the
subject of afterlife here) - ive been giving some thought
recently to the 'wisdom of age'..
now, i realise im only 23 - so i dont have the perspective
on this that, say, someone in their 40s has.
but it was sort of niggling at me the way most of my
parent's friends, or my girlfriend's parents etc. treat the
attitudes/passtimes/opinions of those younger than them with
a sort of smirking contempt.
rolling their eyes, sighing, saying "never mind - theyll
learn"..
but they were young too once. how can it be that they sit in
this priviledged position that comes with age, knowing that
everything they did prior to that point was "wrong".
how can something be wrong simply because the person who
does it is young?
surely they did what was right at that point in their life?
i know some very wise young people and some very stupid
older people.. and vice versa, obviously.
surely, if i accept their belief - then everything i
do/think/feel is futile.. because it is wrong.
i simply can't get my head around this.
human beings are not consistant - that is pretty much a
fact. it is therefore my belief that our viewpoints stem
from our position in life relative to our death.. that our
proximity to our own mortality shapes our world view.
this would also account for the way in which people who
suffer illness/near-death experiences/hardship are said to
"mature". that, to me, is the wisdom of age - its simply a
changing approach to life, brought about by attempts to cope
with the one thing we can't reconcile - our own mortality.
the only "folly" of youth, if thats what you can call it, is
that (by + large) younger people seem to live life further
away from their natural death - so it's less of a deciding
factor in their approach to life..
if that makes sen


 

offline acrid milk hall from United Kingdom on 2004-03-25 16:46 [#01119503]
Points: 2916 Status: Lurker | Followup to acrid milk hall: #01119499



se?


 

offline J Swift from United Kingdom on 2004-03-25 16:58 [#01119545]
Points: 650 Status: Regular | Followup to rongEnemy: #01119350



You should come to my stand-up show!

I guess the idea is, that if everything is inter-connected,
then concepts of a consiousness being universal aren't too
far-fetched.

Of course the minor details of religion are going to be
flawed cos they're polluted with a lot of human imagination.


 

offline rockenjohnny from champagne socialism (Australia) on 2004-03-25 17:10 [#01119577]
Points: 7983 Status: Lurker



whered religion come into this?

but i love theological arguments so im going to chip in :)

you cant scientifically pinpoint spirituality - that being
the will to be the best person you can be. and its not done
to impress anyone else.


 


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