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laniatus
from United States on 2005-06-16 13:59 [#01634597]
Points: 408 Status: Lurker
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Yeah, my little brother is only getting more ill. Turns out I was wrong. Most people with it die in their child hood. Heres a picture of him when he was doing okay. I took it when he was doing homework.
little brother
We've been having fun together, I put costume make up on him and made him look like a skull, I played some Aphex Twin and he loved the milkman song. Other than that, just replaying Lemony Snicket a million times. Just thought I'd keep you guys updated on the little scout.
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PhystPhukt
from The Holiest of Holes (United States) on 2005-06-16 14:00 [#01634600]
Points: 1414 Status: Addict
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I hope he gets better.....
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dog_belch
from Netherlands, The on 2005-06-16 14:02 [#01634602]
Points: 15098 Status: Addict | Show recordbag
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2 posts, 2 lesbians, what are the odds?
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aclockworkcalx
from São Paulo (Brazil) on 2005-06-16 14:02 [#01634603]
Points: 195 Status: Lurker
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3/3
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laniatus
from United States on 2005-06-16 14:03 [#01634605]
Points: 408 Status: Lurker
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Thanks, I need all the hope I can get. Mines been faltering lately. I don't mean to sound cold and heartless. It's just hard to watch after him now fully knowing his condition and the reality of it all.
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PhystPhukt
from The Holiest of Holes (United States) on 2005-06-16 14:08 [#01634613]
Points: 1414 Status: Addict | Followup to PhystPhukt: #01634600
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Who said anything about me being a Lesbian? I only date Lemurs.
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010101
from Vancouver (Canada) on 2005-06-16 14:15 [#01634621]
Points: 7669 Status: Regular
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I hope he improves Cystic Fibrosis rollercoasts from being very bad to a minor inconvienience. Keep hoping for the later. It must be very hard for you.
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fleetmouse
from Horny for Truth on 2005-06-16 14:22 [#01634625]
Points: 18042 Status: Lurker
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Oh he's a cute little feller. Hope he gets better.
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laniatus
from United States on 2005-06-16 14:23 [#01634627]
Points: 408 Status: Lurker | Followup to 010101: #01634621
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Thanks, that was really sweet of you. It is hard, but so hard for him too. He's a little boy, he shouldn't have to deal with this.
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Skink
from A cesspool in eden on 2005-06-16 14:34 [#01634648]
Points: 7483 Status: Lurker | Followup to laniatus: #01634627
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I can only say that i wish for the both of you, good things.
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godataloss
from Cleveland (United States) on 2005-06-16 14:38 [#01634654]
Points: 1416 Status: Lurker
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"used to be a genetic mystery, and most people with the disease didn't live beyond their teens. But researchers have made progress in unraveling the genetic basis of CF, which has led to earlier detection. In addition, improved and more consistent treatments now allow people with CF to live into their 30s and 40s and even beyond, and to have fuller, more comfortable lives."
That's pleanty of time for a cure. Once we kick the Republicans out of office and start a proper stem-cell program he'll be right as rain.
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try-pod
from Wimbledon, London (United Kingdom) on 2005-06-16 15:25 [#01634718]
Points: 136 Status: Lurker
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That's really upsetting. What a nice little brother he seems to be. I once had my photo taken for a CF charity campaign- hope it helps!
Anyway, best of luck.
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