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acrid milk hall
from United Kingdom on 2004-03-25 13:33 [#01118288]
Points: 2916 Status: Lurker
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channel 4. march 25. 9pm
"The last few months in the life of Jonny Kennedy, an amazing 36-year-old who, since birth, has suffered from a rare genetic skin condition (Epidermolysis Bullosa, or EB), where any knock or friction means his skin blisters and literally comes off. Jonny has now been told that, as a result of EB, he has terminal cancer and has just months to live.
But far from bemoaning his lot, Johnny is planning to make the last days of his life as exciting as possible. Not only does he organise his own funeral, but he also moves into his own home, goes gliding and visits Downing Street to talk about Debra, the fundraising charity for the condition. Every so often a documentary comes along that is absolutely extraordinary, and this is one of them. Jonny's courage should be applauded."
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pomme de terre
from obscure body in the SK System on 2004-03-25 13:34 [#01118292]
Points: 11941 Status: Moderator | Show recordbag
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*doesn't set vcr*
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rudster
from the glasgow on 2004-03-25 13:34 [#01118293]
Points: 3169 Status: Lurker
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hmm will check oot later
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Anus_Presley
on 2004-03-25 13:34 [#01118294]
Points: 23472 Status: Lurker
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yeah i plan to watch it.
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acrid milk hall
from United Kingdom on 2004-03-25 13:35 [#01118298]
Points: 2916 Status: Lurker | Followup to acrid milk hall: #01118288
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the boy whose skin fell off..
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Xanatos
from New York City (United States) on 2004-03-25 13:35 [#01118299]
Points: 3316 Status: Moderator | Show recordbag
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its called "the boy whose skin fell off"?
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pomme de terre
from obscure body in the SK System on 2004-03-25 13:35 [#01118300]
Points: 11941 Status: Moderator | Show recordbag
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Id hit it.
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tango
from Doncaster (United Kingdom) on 2004-03-25 13:35 [#01118301]
Points: 1620 Status: Lurker
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i heard about this on lbc earlier - i missed what the disease was tho as i switched on halfway through - i may give it a look
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Anus_Presley
on 2004-03-25 13:35 [#01118302]
Points: 23472 Status: Lurker | Followup to Xanatos: #01118299
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yes
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oscillik
from the fires of orc on 2004-03-25 13:36 [#01118303]
Points: 7746 Status: Regular
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*sing along to chorus of The Zephyr Song*
fly away on my leper i'll glue his wings together and in this perfect weather his skin will never sever
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Netlon Sentinel
from eDe (Netherlands, The) on 2004-03-25 13:42 [#01118320]
Points: 4736 Status: Lurker
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goes gliding???
heh
:/
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Anus_Presley
on 2004-03-25 14:08 [#01118508]
Points: 23472 Status: Lurker
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poorr rrotten buggerr.
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acrid milk hall
from United Kingdom on 2004-03-25 14:11 [#01118536]
Points: 2916 Status: Lurker
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indeed
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Anus_Presley
on 2004-03-25 14:12 [#01118551]
Points: 23472 Status: Lurker
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bahahahaha things such as 'constant wanking... pull the skin off'
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promo
from United Kingdom on 2004-03-25 15:11 [#01119024]
Points: 4227 Status: Addict
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Very very sad.
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JLefrere
from London (United Kingdom) on 2004-03-25 15:25 [#01119120]
Points: 253 Status: Regular
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When he was talking to McAndrew, it was so so sad...but then after it, what he did, joking about it, that was nice to see :) but of course, not really a happy ending. I mainly pitied him for his idea of the afterlife, but I suppose I'd end up thinking the same if I had the disease.
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J Swift
from United Kingdom on 2004-03-25 15:33 [#01119166]
Points: 650 Status: Regular | Followup to JLefrere: #01119120
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"I mainly pitied him for his idea of the afterlife.."
I hate people like you so much.
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JLefrere
from London (United Kingdom) on 2004-03-25 15:35 [#01119182]
Points: 253 Status: Regular
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"Religion is the opium of the people" - so true.
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J Swift
from United Kingdom on 2004-03-25 15:38 [#01119203]
Points: 650 Status: Regular | Followup to JLefrere: #01119182
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Never even mentioned religion
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marlowe
from Antarctica on 2004-03-25 15:42 [#01119227]
Points: 24588 Status: Lurker
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So, the question has to be asked --- Who's been logging in as Anus_presley since September!?!?!
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JLefrere
from London (United Kingdom) on 2004-03-25 15:42 [#01119228]
Points: 253 Status: Regular
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Erm I just reiterated what you picked out from what I said...
Or is it that you hate me for being arrogant? I don't really care, I know I am, sometimes I have strong views, stick to them and denounce what anyone else says. It's not like I can't be influenced by people into changing what I think, it's happened every now and then, but for the most part I'll think and say whatever the fuck I like thank you very much.
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marlowe
from Antarctica on 2004-03-25 15:44 [#01119233]
Points: 24588 Status: Lurker | Followup to JLefrere: #01119228
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Is Milton Keynes still the turd-bowl of England?
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princo
from Shitty City (Geelong) (Australia) on 2004-03-25 15:46 [#01119247]
Points: 13411 Status: Lurker
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The Boy whose pants feel down!
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big
from lsg on 2004-03-25 15:46 [#01119249]
Points: 23726 Status: Regular | Show recordbag
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But far from bemoaning his lot, Johnny is planning to make
the last days of his life as exciting as possible. Not only does he organise his own funeral, but he also moves into his
own home, goes gliding and visits Downing Street to talk about Debra, the fundraising charity for the condition.
:(
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Anus_Presley
on 2004-03-25 15:48 [#01119258]
Points: 23472 Status: Lurker
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who's this marlowe chap?
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JLefrere
from London (United Kingdom) on 2004-03-25 15:51 [#01119276]
Points: 253 Status: Regular
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Yes, MK's famous for being, shite basically. I'm out of here in september, after 18 years of gridded, monotonous concrete.
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J Swift
from United Kingdom on 2004-03-25 15:53 [#01119280]
Points: 650 Status: Regular | Followup to JLefrere: #01119228
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No I just hate people who say things like that in general.
Arrogant yeah - Especially when scientists don't even know what 90% of the Universe is made of.
Still, you're a local boy! Know the Junction 14 lot??
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JLefrere
from London (United Kingdom) on 2004-03-25 15:58 [#01119296]
Points: 253 Status: Regular
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Yeah I know, I suppose I am basing my atheism on science disproving religion. But I think I'd believe the same if there were no scientists or religious leaders, it's just much more likely that there's nothing more to what we see.
Anyway um...no can't say I do? don't really know what you're talking about maybe I'm just being thick.
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marlowe
from Antarctica on 2004-03-25 15:58 [#01119297]
Points: 24588 Status: Lurker
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I want to know how this boy afforded a house?? Skimming money from his charity, I'll bet :@!
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Anus_Presley
on 2004-03-25 16:00 [#01119303]
Points: 23472 Status: Lurker | Followup to marlowe: #01119297
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He's an actorr. Everr seen Alien Resurrection?
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rongEnemy
from Atlanta (United States) on 2004-03-25 16:03 [#01119311]
Points: 705 Status: Regular | Followup to acrid milk hall: #01118288
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HAHAHAHAHAHAHAHAH THAT GUYS SOOOO FUCKIN UGLY!!!!! LMMFAO!!!
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big
from lsg on 2004-03-25 16:04 [#01119321]
Points: 23726 Status: Regular | Show recordbag
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i bet you guys wouldnt find it as funny if your skin came off
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J Swift
from United Kingdom on 2004-03-25 16:05 [#01119324]
Points: 650 Status: Regular
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You realise the current Unified Theory (of everything) is that the reality we can see and experience is supported by pockets of energy existing in 26-dimensional hyperspace (number of dimensions varies depending on which version of string theory, or M-theory, you're going along with).
Science is easily leapfrogging religion in "far out"-ness these days.
It is also theorised that reality is constantly folding and unfolding itself, and is all supported by this underlying energy and order... There's also a thing called a "God" particle - Which is the thing that turns energy into matter..
Still all theoretical - But science hasn't been contradicting religion since the days of Newton... In fact, the two have a very large grey middle ground these days..
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rongEnemy
from Atlanta (United States) on 2004-03-25 16:05 [#01119326]
Points: 705 Status: Regular | Followup to big: #01119321
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SKIN????!!!!!!!! HAHAHAHAHHAHAHAHAHAH THATS SOOOOO FUCKIN FUNNY!!!!!! LMMFAO!!!!!!1
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big
from lsg on 2004-03-25 16:08 [#01119339]
Points: 23726 Status: Regular | Followup to rongEnemy: #01119326 | Show recordbag
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uhm, skin
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J Swift
from United Kingdom on 2004-03-25 16:08 [#01119340]
Points: 650 Status: Regular
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I'd recommend anyone check out David Bohm's work (Google) - Regarded as the most important quantum physicist of our time.
Things he has to say on non-locality and cosmic order are pretty mind blowing if you're not too up to date with modern physics.
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Anus_Presley
on 2004-03-25 16:10 [#01119349]
Points: 23472 Status: Lurker | Followup to big: #01119321
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who finds it funny?
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rongEnemy
from Atlanta (United States) on 2004-03-25 16:10 [#01119350]
Points: 705 Status: Regular
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HAHAHAHAHAHHAAHHAHAAHAH!!!!!!! QUANTUM PHYSICIST!!??!!!?? HOLY SHIT! IM GONNA PASS OUT FROM LAUGHING SO MUCH!!!!!!!! YOU GUYS ARE HILARIOUS!!!!
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big
from lsg on 2004-03-25 16:13 [#01119358]
Points: 23726 Status: Regular | Followup to Anus_Presley: #01119349 | Show recordbag
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me i was kidding how awful of me :9
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acrid milk hall
from United Kingdom on 2004-03-25 16:13 [#01119365]
Points: 2916 Status: Lurker
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in medieval times - science + religion went hand in hand. scientists sought to understand the world around them in order to better appreciate the world god had created for them.
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JLefrere
from London (United Kingdom) on 2004-03-25 16:16 [#01119383]
Points: 253 Status: Regular
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I know about string theory, yes, but I'm thinking about things on a much more basic level than that. Religion isn't mainly concerned with the structure of the universe (unless you want to believe that Earth is 6000 years old or whatever it was). I was talking about the (imo) absurd idea of the afterlife. When you die, your brain shuts down, and you rot in the ground. Why should there be anything more? No reason for it whatsoever. The fact that we call ourselves life has no significance, we're all just matter and energy. It's all there for believing for those with a bad life, exploited or in this case dying of illness. Even William Blake, certified megachristian, believed in this. I forget the exact quote, I think it was in 'a chimney sweeper' if you've read it, "they are gone up to praise god and his priest and king/who make up a heaven of our misery"
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acrid milk hall
from United Kingdom on 2004-03-25 16:45 [#01119499]
Points: 2916 Status: Lurker
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death is the only certainty in life. everything we are is a (concious or subconcious) reaction to our own mortality.
that might sound a bit morbid on paper - but i actually find it quite positive.
for instance (and i realise that we're wandering off the subject of afterlife here) - ive been giving some thought recently to the 'wisdom of age'..
now, i realise im only 23 - so i dont have the perspective on this that, say, someone in their 40s has.
but it was sort of niggling at me the way most of my parent's friends, or my girlfriend's parents etc. treat the attitudes/passtimes/opinions of those younger than them with a sort of smirking contempt.
rolling their eyes, sighing, saying "never mind - theyll learn"..
but they were young too once. how can it be that they sit in this priviledged position that comes with age, knowing that everything they did prior to that point was "wrong".
how can something be wrong simply because the person who does it is young?
surely they did what was right at that point in their life? i know some very wise young people and some very stupid older people.. and vice versa, obviously.
surely, if i accept their belief - then everything i do/think/feel is futile.. because it is wrong.
i simply can't get my head around this. human beings are not consistant - that is pretty much a fact. it is therefore my belief that our viewpoints stem from our position in life relative to our death.. that our proximity to our own mortality shapes our world view.
this would also account for the way in which people who suffer illness/near-death experiences/hardship are said to "mature". that, to me, is the wisdom of age - its simply a changing approach to life, brought about by attempts to cope with the one thing we can't reconcile - our own mortality.
the only "folly" of youth, if thats what you can call it, is that (by + large) younger people seem to live life further away from their natural death - so it's less of a deciding factor in their approach to life..
if that makes sen
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acrid milk hall
from United Kingdom on 2004-03-25 16:46 [#01119503]
Points: 2916 Status: Lurker | Followup to acrid milk hall: #01119499
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se?
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J Swift
from United Kingdom on 2004-03-25 16:58 [#01119545]
Points: 650 Status: Regular | Followup to rongEnemy: #01119350
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You should come to my stand-up show!
I guess the idea is, that if everything is inter-connected, then concepts of a consiousness being universal aren't too far-fetched.
Of course the minor details of religion are going to be flawed cos they're polluted with a lot of human imagination.
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rockenjohnny
from champagne socialism (Australia) on 2004-03-25 17:10 [#01119577]
Points: 7983 Status: Lurker
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whered religion come into this?
but i love theological arguments so im going to chip in :)
you cant scientifically pinpoint spirituality - that being the will to be the best person you can be. and its not done to impress anyone else.
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